Talking about autoimmune disorders with family and friends, as well as your health providers, can be a difficult and personal experience. However, it is important to openly and honestly communicate your diagnosis to ensure you get the best care and support. Here are some tips on how to approach the conversation with family and health providers.
1. Prepare Yourself
When beginning to talk about autoimmune disorders with your family and friends, take the time to prepare yourself and your thoughts. Write down the facts about your disorder, so you can be clear and specific in your conversation. Consider how your family and friends may react and plan for any potential questions.
2. Speak Openly and Honestly
When discussing autoimmune disorders with family and friends, be sure to be open and honest. Share only what you are comfortable with, but also allow them to ask questions. On the other hand, if you prefer to keep certain aspects of your medical history and treatment private, you do have the right to do so.
3. Reach Out to Your Health Care Team
Don’t forget to talk to your health care team about autoimmune disorders and how others may need to be involved. Your doctor, nurses and other healthcare professionals can provide guidance and support in communicating with family and friends.
4. Ask for Support
Asking family and friends for help and support is an important step. Although it is hard to be vulnerable and ask for help, it can be beneficial in helping you through this difficult time. Even small gestures like grocery shopping, picking up prescriptions, or simply being a listening ear can be very helpful.
5. Join an Autoimmune Disorders Support Group
If you are looking for more support during this time, join a support group. Meeting people who understand what you are going through can be comforting and a great source of comfort and information. There are many online and in-person support groups that offer specific advice and resources for people living with autoimmune diseases.
Talking about autoimmune diseases is a personal and intimate experience. Taking the time to prepare yourself, speak openly and honestly, reach out to your health care team, and asking for support can help make the conversation easier and more comfortable for everyone involved. Furthermore, joining a support group can provide additional resources and support.